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Women and HIV

Education Packet

Women and HIV – This packet is a compilation of several recent fact sheets and other resources. You may wish to customize it to meet the needs or interests of particular groups, such as event participants, providers, patients, clients, or the general public. So please feel free to distribute all or part of this packet as either a printout or PDF. 

Fact Sheets, Reports, and Infographics

HIV and Women (CDC) – This web page presents information about trends in HIV diagnoses among women in the U.S., with breakdowns by transmission category, race/ethnicity, and age.  It also discusses the HIV care continuum among women, the various factors that can place women at risk for HIV infection, and the steps CDC is taking to address the needs of women affected by HIV.  Also available in Spanish.

HIV and Women (HIVinfo) - This fact sheet in question-and-answer format provides information on how HIV affects women, factors that put women at risk for HIV, and the ways that birth control and pregnancy may affect women’s HIV treatment choices. Also available in Spanish

Women and HIV in the United States (Kaiser Family Foundation) – This issue brief focuses on the impact of HIV/AIDS on U.S. women.  It includes a snapshot of the epidemic, a review of key trends and recent cases, information on reproductive health and HIV transmission specific to women, HIV testing, access to prevention and care, and intimate partner violence. 

HIV and Pregnant Women, Infants, and Children (CDC) – This fact sheet includes information about trends in mother-to-child transmission of HIV, why pregnant women and their babies are at risk for infection, strategies for preventing transmission, and steps CDC is taking to address perinatal transmission. 

Female Clients: Ryan White HIV/AIDS Program, 2019 (Health Resources and Services Administration) – This fact sheet summarizes selected demographic characteristics of female clients in the Ryan White HIV/AIDS Program (RWHAP). Over one-quarter (26.2%) of the approximately 568,000 RWHAP clients in 2019 were female. Among female clients, about half (49.7%) were age 50 years or older, 69.8% lived at or below the federal poverty level, and 87.9% were virally suppressed. More detailed information is provided about these and other demographic characteristics. 

Women and HIV: A Spotlight on Adolescent Girls and Young Women (UNAIDS) – This report discusses U.N. goals for addressing HIV in adolescent girls and young women; the epidemiology of HIV in this population group; the reasons, including gender-based violence, why adolescent girls and young women globally have a disproportionally high risk of HIV infection; access to HIV services; and the healthcare, reproductive, and HIV-specific needs of girls and women throughout their life cycle. 

National HIV Curriculum: HIV in Women (AIDS Education and Training Center, University of Washington, and other partners, 2020) – This is the third lesson in the Curriculum’s Key Populations module. It has detailed information on many topics, including:

  • Background
  • HIV Epidemiology in Women
  • Antiretroviral Therapy in Women
  • Contraception in Women with HIV
  • Contraception Considerations for Women at Risk for HIV
  • Serodifferent Couples Desiring Pregnancy
  • Vaginitis in Women with HIV
  • Women with HIV and Gender-Based Violence
  • Menopause in Women with HIV 

AIDSVu Data for New England – AIDSVu is an interactive online mapping tool that visualizes the impact of the HIV epidemic on communities across the U.S.  State-by-state data and limited county data for each New England state are available at the following links: Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. The state data include information on new HIV diagnoses, HIV prevalence, HIV testing, and deaths among persons with HIV, with breakdowns by sex. Detailed data are also available for the following areas: Boston, the Hartford metropolitan statistical area (MSA); the Bridgeport-Stamford-Norwalk MSA, and the New Haven-Milford MSA. 

Infographics on Women, Girls, and HIV (CDC and AIDSVu):

 

HIV Surveillance Reports and Data Analyses 

Diagnoses of HIV Infection in the United States and Dependent Areas, 2019 (CDC) – This 123-page surveillance report includes detailed information about new HIV diagnoses, prevalence, and deaths among women. Breakdowns are also provided by age, race/ethnicity, transmission category, and geographic region. The report includes a series of Special Focus Profiles highlighting six populations of particular interest to HIV prevention programs in state and local health departments, including women. In addition, Tables 3a, 3b, 13a, 13b, 17a, and 17b focus specifically on HIV diagnoses, deaths, and prevalence by sex at birth. Some other tables that focus on different characteristics also include breakdowns by sex at birth.

Estimated HIV Incidence and Prevalence in the United States, 2015-2019 (CDC) – This report provides estimates of the number of new HIV infections and the total number of persons living with HIV during each year from 2015 through 2019. It begins with a commentary section that summarizes highlights of the report, followed by 13 tables that present data on HIV incidence and prevalence among adults and adolescents, with breakdowns by sex at birth, age, race/ethnicity, transmission category, and region of residence. The sex at birth data include statistics for adult and adolescent women. In addition, the transmission category data include breakdowns by sex at birth for heterosexual contact and injection drug use. An appendix focuses on the estimated incidence and prevalence of HIV infection among adults and adolescents living in Ending the HIV Epidemic (EHE) Phase 1 jurisdictions.

Monitoring Selected National HIV Prevention and Care Objectives by Using HIV Surveillance Data United States and 6 Dependent Areas, 2019 (CDC) – This report presents the results of focused analyses of U.S. HIV surveillance data to measure progress toward ending the HIV epidemic. It includes information on the stage of HIV disease at time of diagnosis, linkage to HIV medical care, viral suppression, prevalence-based HIV care continuum, HIV deaths and survival, use of pre-exposure prophylaxis (PrEP), and perinatal HIV infections. The report also includes a series of Special Focus Profiles highlighting six populations of particular interest to HIV prevention programs in state and local health departments, including women. For some measures, data are broken down by gender, as well as age, race/ethnicity, transmission category, and area of residence.

Estimated HIV Incidence and Prevalence in the United States, 2010-2019 (CDC) – This slide set summarizes trends in HIV incidence during the 2010s, with breakdowns by sex, age, race/ethnicity, transmission category, and region. Data for 2019 is also provided on knowledge of HIV status, as well as HIV prevalence in the 50 states, District of Columbia, and Puerto Rico.

HIV Infection, Stage 3 (AIDS), 2019 (CDC) – This slide set summarizes trends in AIDS diagnoses and deaths from 1985 to 2019, with breakdowns by sex, age, race/ethnicity, transmission category, and region. Data on cumulative AIDS diagnoses and deaths through 2019, and AIDS data for Metropolitan Statistical Areas are also provided.

Selected Web Sites and Organizations Focusing on Women and HIV 

HIV and AIDS (Office of Women’s Health) – This web page has information about HIV in women and girls, information about National Women and Girls HIV/AIDS Awareness Day, HIV prevention, and living with HIV. Also available in Spanish

The Well Project – This web site focuses on HIV prevention, treatment, and wellness among women living with, or at risk for, HIV infection. The Well Project has also established an active online community of women with HIV. 

Women Organized to Respond to Life-Threatening Diseases (WORLD) – The mission of WORLD is to improve “the lives and health of women, girls, families, and communities affected by HIV through peer-based education, wellness services, advocacy, and leadership development.”

 

The contents listed on this page are those of the author(s) and do not necessarily represent the official views of, nor an endorsement by, the New England AIDS Education and Training Center.